My family is very thankful for this day, October 15. I consider it a horrible day but then again it could just be my outlook on life right now which is nothing great. I want to be happy and I want to laugh again because I do have a great laugh and great humor! But I've lost it in this whirlwind of medicines and side effects and just having to deal with my life different now. For the longest time I have fought with the idea of just being sick and now I have to realize that I am sick and it won't be forever and I really hope I won't be taking medicines the rest of my life but that isn't guaranteed..I have to remember that I will be okay and not to let this disease take over my life which it has the past 8 months.
I have been to my hell and I'm still in it's grave. But now I have the choice to crawl out of it or lie in it and make myself comfortable..I really want to chose option A and I'm doing everything I can to take my life back. I still have weak moments but the conversations I have with strangers that become permanent in my life makes me want to hold onto my life even tighter.
Totally get how you feel. I'm 18 years old and was diagnosed with necrotizing myopathy in September 2013 (exactly same symptoms as polymyositis) I went from being an active happy barely just reached 18 teenager to a girl who couldn't raise her arms in the air or get up from a chair. Hardest thing to deal with for me was the fact I wouldn't be going to university with all my friends, instead I'd be stuck in hospital fighting a disease that no one really understands.
ReplyDeleteI'm so sorry..I've been all over with emotions and it's hard watching your friends while you can't even move, I get it. If you ever want talk or talk about anything annoying or bothering you please email me. I'm really good at internalizing and that's not good at all and I don't want you to go down that emotional road by yourself so use me to get anything out that is bothering you.
DeleteEmail: Hayleyw.pm@gmail.com